About Our Center
If you or a loved one are living with any form of NF, you understand that it can be a challenge to find one center with all the specialty expertise NF demands, such as pediatric and adult neurology, neurosurgery, neuro-oncology and genetics. The Johns Hopkins Comprehensive Neurofibromatosis Center unites these services under one roof, offering patients a coordinated, one-stop shop for NF care. We provide care across the lifespan (pediatrics to adults) as part of one comprehensive team.
Meet our team
Request an Appointment
In-person and telemedicine appointment options are available for initial consultations and follow-up care. Learn more about appointments and referrals.
For patients with suspected NF1 to schedule a genetic evaluation:
443-997-1439
Genetics Clinic
For patients with confirmed NF1, and those with any type of suspected or confirmed schwannomatosis (NF2, LZTR1 or SMARCB1-related schwannomatosis, or schwannomatosis NOS) please call:
410-614-3853
Pediatric Patients
410-502-6732
Adult Patients
NF Research, Clinical Trials and Education
-
Clinical Trials
Researchers at Johns Hopkins and around the world are investigating ways to slow the growth of NF-related tumors and prevent them from forming altogether.
-
Neurofibromatosis Therapeutic Acceleration Program (NTAP)
Johns Hopkins researchers have founded and lead NTAP – an organization that conducts and funds breakthrough research to accelerate treatment options for NF1-related plexiform and cutaneous neurofibromas.
-
Neuro-Oncology Fellowship
Our NF specialists are involved in training the next generation of physician-scientists and leaders in the field of neuro-oncology as part of this fellowship program.
Children's Tumor Foundation
The Johns Hopkins Comprehensive Neurofibromatosis Center is designated as an affiliated clinic of the Children’s Tumor Foundation, a collaborative network of NF treatment centers, research institutions and community groups. The Children's Tumor Foundation works to fund critical research needs and improve the lives of those with NF.