Leukemia Survivors Program
You’ve survived leukemia – so now what?
Whether you’ve just finished your last round of chemotherapy or you’ve been cancer-free for years, your long-term health care needs as a survivor are different from those of a “regular” patient. You may have had aggressive treatments to survive your disease—treatments that might cause health complications down the road. You may be looking for help in getting back to your school, your job, and your relationships as you move from cancer patient to cancer survivor. The Michael J. Garil Leukemia Survivors Program can help.
Michael J. Garil Leukemia Survivors Program
The Michael J. Garil Leukemia Survivors Program is comprised of two main components. The program's Life Clinic at Johns Hopkins Sidney Kimmel Comprehensive Cancer Center promotes the long-term health of patients who have survived childhood leukemia. Here, we chart patients' new course to living healthy again by developing a long-term plan for a strong body and sound mind. The program's research initiatives aim to better understand the reasons certain patients are predisposed to the long-term effects of cancer therapy, as well as how adverse late effects impact the lives of survivors.
The Survivor Program benefits from the same expertise and groundbreaking research and clinical programs that have made The Johns Hopkins Sidney Kimmel Comprehensive Cancer Center a world leader in cancer treatment. The Center is on the list of survivor follow-up care clinics recommended by the Association of Cancer Online Resources (ACOR). We’re also members of the National Comprehensive Cancer Network and the National Cancer Institute’s Comprehensive Cancer Centers.
Late Effects TrackerBy Cancer Type
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Survivors may experience the following late effects, depending on their treatment(s):
- cardiovascular disease (including congestive heart failure, infection of the heart sac, and arrhythmias)
- bladder damage
- kidney damage
- liver damage
- lung damage
- hormonal imbalances
- reduced fertility or infertility in men and women
- osteonecrosis, or bone death
- higher risk of obesity
- elevated cholesterol levels
- hepatitis B and C (see "Blood Transfusion" for more information)
- cognitive and learning difficulties ("chemo brain")
- slow growth
- secondary cancers
- depression and other psychological disorders
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Acute myeloid leukemia survivors may experience the following late effects, depending on their treatment(s):
- cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
- bladder damage
- kidney damage
- liver damage
- hormonal imbalances
- reduced fertility or infertility in men and women
- bone death (osteonecrosis)
- earning, memory, and cognition difficulties ("chemo brain")
- hearing loss
- hepatitis B and C (see "Blood Transfusion" for more information)
- secondary cancers
- depression and other psychological disorders
-
Chronic myeloid leukemia survivors may experience the following late effects, depending on their treatment(s):
- cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
- reduced fertility or infertility in men and women
- lung damage
- kidney damage
- bladder damage
- liver damage
- learning, memory, and cognition difficulties ("chemo brain.")
- hepatitis B and C (see "Blood Transfusion" for more information)
- secondary cancers
- depression and other psychological disorders
-
Chronic lymphocytic leukemia survivors may experience the following late effects, depending on their treatment(s):
- cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
- reduced fertility or infertility in men and women
- elevated cholesterol levels
- higher risk of obesity
- kidney damage
- bone death (osteonecrosis)
- learning, memory, and cognition difficulties ("chemo brain.")
- hepatitis B and C (see "Blood Transfusion" for more information)
- secondary cancers
- depression and other psychological disorders
-
Myelodysplastic syndrome survivors may experience the following late effects, depending on their treatment(s):
- cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
- reduced fertility or infertility in men and women
- bladder damage
- kidney damage
- hepatitis B and C (see "Blood Transfusion" for more information)
- secondary cancers
- depression and other psychological disorders
-
Myeloproliferative disorder survivors may experience the following late effects, depending on their treatment(s):
- cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
- reduced fertility or infertility in men and women
- bladder damage
- kidney damage
- liver damage
- learning, memory, and cognition difficulties ("chemo brain")
- hepatitis B and C (see "Blood Transfusion" for more information)
- secondary cancers
- depression and other psychological disorders
Late Effects TrackerBy Cancer Treatments
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Asparaginase
- elevated cholesterol levels
- higher risk of obesity Blood transfusion
- hepatitis B (if transfusion received before 1972)
- hepatitis C (if transfusion received before 1993)
Busulfan
- reduced fertility or infertility in men and women
- lung damage and dysfunction
Carboplatin
- reduced fertility or infertility in men and women
- kidney damage or dysfunction
- tingling, pain or weakness in limbs, face (also called peripheral neuropathy)
- hearing loss
Carmustine
- reduced fertility or infertility in men and women
- lung damage and dysfunction
Chlorambucil
- cardiovascular damage and dysfunction
- reduced fertility or infertility in men and women
- secondary cancers
Cladribine
- tingling, pain or weakness in limbs, face (also called peripheral neuropathy)
- kidney damage and dysfunction
Clofarabine
- no late or long-term effects known
Cyclophosphamide
- cardiovascular damage and dysfunction
- bladder damage and dysfunction
- kidney damage and dysfunction
- reduced fertility or infertility in men and women
- secondary cancers
Cytarabine
- cognition, learning and memory difficulties
- reduced fertility or infertility in men and women
- liver damage and dysfunction
Dacarbazine
- reduced fertility or infertility in men and women
Dasatinib
- no late or long-term effects known
Daunorubicin
- cardiovascular damage and dysfunction
- secondary cancers
Doxorubicin
- cardiovascular damage and dysfunction
- secondary cancers
Epirubicin
- cardiovascular damage and dysfunction
- secondary cancers
Etoposide
- secondary cancers
Fludarabine
- kidney damage and dysfunction
- bone death (osteonecrosis)
- secondary cancers
Gemcitabine
- no late or long-term effects known
Idarubicin
- cardiovascular damage and dysfunction
- secondary cancers
Ifosfamide
- reduced fertility or infertility in men and women
- kidney damage and dysfunction
Imatinib (Gleevec)
- no late or long-term effects known
-
Mechlorethamine (nitrogen mustard)
- cognition, learning and memory difficulties
- reduced fertility or infertility in men and women
- lung damage and dysfunction
- secondary cancers
Melphalan
- lung damage and dysfunction
- secondary cancers
Mercaptopurine
- liver damage and dysfunction
Methotrexate
- osteoporosis or osteopenia
- cognition, learning and memory difficulties
- kidney damage and dysfunction
- liver damage and dysfunction
Mitoxantrone
- cardiovascular damage and dysfunction
- secondary cancers
Pegaspargase
- no late or long-term effects known
- reduced fertility or infertility in men and women
- secondary cancers
Radiation Therapy
- cardiovascular damage and dysfunction
- lung damage and dysfunction
- kidney damage and dysfunction
- liver damage and dysfunction
- cognition, learning and memory difficulties
- dental disorders (weak teeth and jaw, dry mouth)
- hormonal disorders (thyroid, pancreas, pituitary gland)
- chronic fatigue
- slow growth and development
- cataracts
- bone death (osteonecrosis)
- reduced fertility or infertility in men and women
- hearing loss
- secondary cancers
Rituximab
- no late or long-term effects known
Steroids
- osteoporosis or osteopenia
- cataracts
- bone death (osteonecrosis)
Teniposide
- secondary cancers
Thioguanine
- liver damage and dysfunction
Thiotepa
- reduced fertility or infertility in men and women
Topotecan
- reduced fertility or infertility in men and women
Transplantation (bone marrow, stem cell or cord blood)
- bone death (osteonecrosis)
- lung damage and dysfunction (after developing graft versus host disease)
Tretinoin
- increase in pressure inside skull (pseudotumor cerebri)
Vinblastine
- tingling, pain or weakness in limbs, face (also called peripheral neuropathy)
Vincristine
- tingling, pain or weakness in limbs, face (also called peripheral neuropathy)