Patient and Family Resources

Patients and families play an important role in the development of research findings and the improvements in care outcomes that result. We look to our patients and families for insights to their experiences before, during, and after the care journey. In turn, we aim to provide equally helpful resources to better understand that journey.

Learn more about pediatric and congenital heart conditions and treatments

Videos About Our Research

Blalock-Taussig-Thomas Heart Center Research Day Presentation - Jenny E. Schramm, M.D.

Pediatric cardiac intensivist Jennifer Schramm discusses her research on CCN proteins in patients with pediatric hypertension. This topic was presented during Blalock-Taussig-Thomas Heart Center Research Day at Johns Hopkins.

Blalock-Taussig-Thomas Heart Center Research Day Presentation – Kristopher Keppel

In this video, Kristopher Keppel, a Johns Hopkins School of Medicine medical student, discusses his research on dark-blood delayed enhancement imaging. This topic was presented during Blalock-Taussig-Thomas Heart Center Research Day at Johns Hopkins.

Blalock-Taussig-Thomas Heart Center Research Day Presentation - Dr. Sean J. Cooney

Sean J. Cooney, a pediatric cardiology fellow at Johns Hopkins, aims to use metabolomics to improve post-operative outcomes in neonates undergoing cardiac surgery for congenital heart disease. This topic was presented during Blalock-Taussig-Thomas Heart Center Research Day at Johns Hopkins.

Channeling Research Innovations for Each Heart Center Warrior

Diagnosed with long qt syndrome (LQTS), Ellie has been monitored remotely by cardiac care experts at Johns Hopkins Children’s Center since she was six months old. Along with the clinicians, a team of researchers is engaging biomedical principles that will provide innovative therapy to restore the heart’s function.

From the Lab to the Unit | Allen Everett, M.D.

Pediatric cardiologist Allen Everett discusses his research about the identification and use of biomarkers, which are circulating molecules that tell researchers about overall health, disease severity, injury and recovery.

From the Lab to the Unit | Ari Cedars, M.D.

Cardiologist Ari Cedars discusses his research on heart failure in adults with CHD. His patient-centered research is focused on patients who were born with CHD and helps them be able to live full lives.

From the Lab to the Unit | Cedric Manlhiot, Ph.D.

Research scientist Cedric Manlhiot studies health data and better ways to collect and store information. This data helps doctors provide better treatment plans for their patients.

From the Lab to the Unit | Danielle Gottlieb Sen, M.D., M.P.H., M.S.

Pediatric heart surgeon Danielle Gottlieb Sen discusses the two major areas of her research: the genetic origins of congenital heart disease and engineering involving monitoring devices for babies and children with this illness.

Pediatric Heart Research, from the Lab to the Unit | Hee Cheol Cho, Ph.D.

Hee Cheol Cho, director of research at Johns Hopkins Children’s Center, discusses his research on heart rhythm.

Pediatric Heart Research, from the Lab to the Unit | Subroto Chatterjee, Ph.D., M.S., M.Sc.

Subroto Chatterjee, director of the Johns Hopkins sphingolipid signaling and vascular biology laboratory, discusses his research on lipid proteins.

Pediatric Heart Research, From the Lab to the Unit | Melania Bembea, M.D., Ph.D., M.P.H.

Melania Bembea, director of the extracorporeal membrane oxygenation (ECMO) program at Johns Hopkins Children’s Center, discusses her research on optimizing outcomes after extracorporeal life support for children who are critically ill — a technology that is used in the form of heart-lung support for children with severe cardiac-pulmonary failure.

Pediatric Clinical Trials

For information about pediatric clinical trial opportunities at Johns Hopkins Medicine, visit our trials site.