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Cindy James, PhD SCM
- Research Director, Johns Hopkins Center for Inherited Heart Diseases;
- Associate Professor of Medicine
Vision
To take the most comprehensive approach to care by tapping into the knowledge of experts from a wide range of fields to work with patients on prevention, early diagnosis, and disease management.
Mission
There remains significant uncertainty about which family member will develop arrhythmogenic right ventricular cardiomyopathy (ARVC) and how best to approach longitudinal screening of at-risk family members. Our Center goals are directed toward personalization of risk assessment and management for both patients and at-risk family members.
Center Goals
Development and validation of models for individualized ventricular arrhythmia risk prediction
Work towards an evidence base for early detection, family screening, and family management
Patient Care and Community
Our comprehensive arrhythmogenic right ventricular cardiomyopathy team includes multi-disciplinary experts specialized in diagnosing, treating and researching ARVC.
The Heart of Precision Medicine
Jasonee was diagnosed with Arrythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C) in 2012. After a sudden dramatic cardiac event, a series of doctors in her hometown struggled to identify a diagnosis and recommend solutions. She found experts at Johns Hopkins, who quickly determined her condition was a rare familial disorder that causes sudden cardiac death in young, apparently healthy individuals. Now receiving proper treatment and observation, Jasonee and her family feel reassured and confident that this condition is manageable and under control, allowing her to live a full and rewarding life with her young son.
Center Directors
Center Team
Brittney Murray
Genetic Counselor Manager
Crystal Tichnell
CO Senior Program Coordinator
Make a Gift
Your donation helps researchers and physicians to make breakthrough in identifying and treating Arrhythmogenic Right Ventricular Cardiomyopathy in patients.
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Phone
Call us at 443-287-7384 to make a gift by phone, or if you have any questions.
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