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Johns Hopkins inHealth

The Johns Hopkins Precision Medicine Center of Excellence for ARVC

Vision

To take the most comprehensive approach to care by tapping into the knowledge of experts from a wide range of fields to work with patients on prevention, early diagnosis, and disease management.

Mission

There remains significant uncertainty about which family member will develop arrhythmogenic right ventricular cardiomyopathy (ARVC) and how best to approach longitudinal screening of at-risk family members. Our Center goals are directed toward personalization of risk assessment and management for both patients and at-risk family members.

Center Goals

Development and validation of models for individualized ventricular arrhythmia risk prediction

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Work towards an evidence base for early detection, family screening, and family management

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Research

Achieving a better understanding of the underlying causes and the progression of ARVC enables us to develop the best approaches to diagnose and manage the disease. Research partnerships are critical components of building our knowledge. Through collaboration with ARVC experts around the world, we are better able to understand the risk factors for this specific kind of heart disease, and to develop the most targeted treatment options.

Discoveries Timeline

Patient Care and Community

Our comprehensive arrhythmogenic right ventricular cardiomyopathy team includes multi-disciplinary experts specialized in diagnosing, treating and researching ARVC.

Experts and ClinicsResearch Opportunities


The Heart of Precision Medicine

Jasonee was diagnosed with Arrythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C) in 2012. After a sudden dramatic cardiac event, a series of doctors in her hometown struggled to identify a diagnosis and recommend solutions. She found experts at Johns Hopkins, who quickly determined her condition was a rare familial disorder that causes sudden cardiac death in young, apparently healthy individuals. Now receiving proper treatment and observation, Jasonee and her family feel reassured and confident that this condition is manageable and under control, allowing her to live a full and rewarding life with her young son.

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Center Directors

  • Hugh Calkins, MD

    • Catherine Ellen Poindexter Professor of Cardiology
    • Professor of Medicine

  • Cindy James, PhD SCM

    • Research Director, Johns Hopkins Center for Inherited Heart Diseases;
    • Associate Professor of Medicine

Center Team

Brittney Murray
Genetic Counselor Manager

Crystal Tichnell
CO Senior Program Coordinator

Make a Gift

Your donation helps researchers and physicians to make breakthrough in identifying and treating Arrhythmogenic Right Ventricular Cardiomyopathy in patients.

Online

Make a gift now or pledge later. Fill out our secure online giving form.

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Phone

Call us at 443-287-7384 to make a gift by phone, or if you have any questions.

Mail

To make a contribution by mail, simply download and print the donation form.

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