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Heart and Vascular Institute

Cardiology

Compassionate Cardiology Treatment Adult Congenital Heart Disease Center

 

The Johns Hopkins Adult Congenital Heart Disease Center ensures continuity of care for congenital heart disease patients as they enter adulthood and throughout the rest of their lives. Our center has been recognized as an Adult Congenital Heart Association (ACHA) ACHD-Accredited Comprehensive Care Center.

Specialized Care

Our specialized clinics provide care throughout various stages of adulthood. You may require care from an adult congenital heart disease specialist if you have congenital heart disease and:
  • Become pregnant 
  • Had surgical heart repairs during childhood that have deteriorated over time
  • Develop acquired heart disease, such as coronary artery disease, as you age
  • Develop pulmonary hypertension

Request an Appointment: 443-997-0270

Learn MoreOverview of Adult Congenital Heart Disease

Congenital heart disease is the most common birth defect in the United States. Patients diagnosed with congenital heart diseases may transition into adulthood with unique complications that require monitoring and  treatment. Surgical repairs that deteriorate over time, abnormal heart rhythms, pulmonary hypertension and heart failure are some complications that adults with congenital heart disease may experience.

Patients with congenital heart disease who are pregnant require monitoring and continuing care.

Learn more about Adult Congenital Heart Disease
doctor listening to male patient's chest

Living with Adult Congenital Heart Disease (ACHD)

During this live webinar, Johns Hopkins specialty trained cardiologists Drs. Ari Cedars and Stacy Fisher discussed the specialized, lifelong care required for ACHD. Learn about available treatment and management options, as well as the continuing tradition of groundbreaking care for congenital heart disease at Johns Hopkins.

Watch on YouTube -

Why Choose Johns Hopkins for Adult Congenital Heart Disease Care

Our center is one of the few in the region that specializes in adult congenital heart disease. Learn what makes our center unique.

Multidisciplinary Team

Our multidisciplinary team of congenital cardiologists, cardio-obstetric specialists, cardiovascular surgeons and therapists provide comprehensive care, often all scheduled the same day for your convenience.
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Advanced Treatment

Johns Hopkins experts are actively engaged in cutting-edge research. You benefit from breakthrough advancements in treatments informed by our research.
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Personalized Care

We work with you to develop a personalized treatment plan, ensuring you get the most out of life by reducing the number of hospital admissions and managing your adult congenital heart disease based on your experiences.
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Testimonials

In the midst of the COVID-19 pandemic the heart valve that was placed 29 years ago to correct my tetralogy of Fallot, failed. This team has made it so I can continue caring for the 6 children I was fortunate to be able to bring into this world.

- Lela White,
Underwent pulmonary valve replacement at Johns Hopkins.

Featured Slide 1

Testimonials

The Johns Hopkins care team was fantastic! I’d like to give some credit to the nurses and the entire team. I felt comfortable with the people around me.

- Levi Silva (center),
Underwent surgery to treat transposition of the great arteries at Johns Hopkins.

Adult patient Levi Silva and his family

Testimonials

This surgery has shown me that I can literally do anything and I am stronger than I ever thought I was. I am forever grateful for everyone at Johns Hopkins who played a part in my surgery. My heart is forever thankful."

- Aubrey Roach (left),
Underwent heart valve replacement surgery to treat several congenital heart diseases.

Featured Slide 3

Congenital Heart Disease Research

Our physicians and scientists are dedicated to improving the health and quality of life for patients diagnosed with congenital heart disease. We collaborate with researchers at The Johns Hopkins Blalock-Taussig-Thomas Pediatric and Congenital Heart Center. Learn more about our patient-centered research.

Learn More
adult congenital heart disease achd - nurse adjusting patient's monitor

RESOURCE AND EDUCATION Learn about Congenital Heart Diseases

If you or a loved one have been diagnosed with a congenital heart disease, learn about the condition and treatments at the Johns Hopkins Cove Point Congenital Heart Resource Center.

Find Your Condition

Family-centered Care Meet Our Experts

Meet our specialists dedicated in treating adult congenital heart diseases.

Find a Specialist

Patient EducationInnovations in Adult Congenital Heart Disease

Cardiologist Stacy Fisher has been caring for complex patients for more than 20 years. But it wasn’t until she joined the Johns Hopkins Medicine Heart and Vascular Institute last July that she felt part of a multidisciplinary team that provides extraordinarily personalized care for adult patients with unique anatomies.

Read more about personalized cardiac care
Stacy Fisher holding a 3D printed model of a heart

Our Clinics

Learn more about our multi-specialty clinics that serve adults diagnosed with congenital heart diseases (ACHD).

Cardio-Obstetrics Clinic

Women diagnosed with adult congenital heart disease are supported in the Cardio-Obstetric Clinic. Our team composed of cardiovascular and maternal-fetal medicine specialists will determine the safety of pregnancy and provide comprehensive care should you become pregnant.

ACHD Heart Failure and Heart Transplant Clinic

Heart failure is common in patients diagnosed with adult congenital heart disease and requires specialized care. Our clinic assesses patients diagnosed with congenital heart disease and heart failure for heart transplant eligibility and care.

ACHD and Pulmonary Hypertension

Patients diagnosed with adult congenital heart disease are at an increased risk of developing pulmonary hypertension. Our center partners with pulmonologists and transplant surgeons for later stage pulmonary hypertension which may require a lung transplant.

Fontan Clinic

The Fontan circulation may lead to complications in multiple organ systems. As a result, Fontan patients require lifelong specialized monitoring and multidisciplinary care. Our center is a home for Fontan patients from childhood through adulthood. It is staffed by a multidisciplinary team to address all organ systems impacted by life with a Fontan circulation.

Specialized Collaboration to Treat Congenital Heart Disease

Our program collaborates with the Cardiovascular Surgery ICU (CVSICU) and cardiac anesthesiologists to evaluate patients with congenital heart disease and determine the best care plan before, during and after surgery to improve patient outcomes.

Prior to surgery, our multidisciplinary team collaborates to create the best treatment plan for each patient and then the most effective surgical approach.

Based on your age, you will be cared for by specialized anesthesiologists, including pediatric cardiac anesthesiologists or providers trained in anesthesia for adult congenital heart disease. We will collaborate with your primary care provider, cardiologist, and other health care provider to ensure you will receive the highest quality of care.

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Locations for Care

Get treated for adult congenital heart disease at our nine convenient locations in the Baltimore and Greater Washington area.

Remote Access to CareTelemedicine Cardiology Services

Our clinic provides telemedicine services for adults diagnosed with congenital heart diseases which can help you manage your condition with more ease and flexibility. 
This service can help young adults who may be away from home attending college or if you who don’t have immediate access to adult congenital heart disease specialists.

Contact us at 443-997-5437 to request an appointment.

Learn more about telemedicine
young woman using computer

Lifetime of CarePediatric and Congenital Heart Center

Congenital heart disease affects almost 1 in every 100 newborns in the United States . The Johns Hopkins Pediatric and Congenital Heart Center is dedicated to provide comprehensive care for children diagnosed with a congenital heart disease. The pediatric center works together with adult specialists to transition young adults to specialized adult congenital heart disease experts for care.

Learn more
doctor listening to little girl's heart