Cystic Fibrosis Research Program

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The Johns Hopkins CF program is actively engaged in many different research studies covering everything from the genetics underlying cystic fibrosis, the diagnosis of CF, symptom management in CF, adherence to CF treatments, improving lung transplant outcomes in CF, and numerous clinical trials of CF therapies. We have been involved in most major trials of new therapeutic agents for CF over the past two decades. Some ongoing studies are highlighted below. Because there are new clinical trials in CF starting frequently, you can find the latest trials at the CF Foundations website https://www.cff.org/Trials/finder.

If you are interested in learning more about CF research at Johns Hopkins you can contact Mary Rykiel at 410-614-1409 or [email protected].

Johns Hopkins Lung Transplant Research Project List

View complete list of lung transplant studies.

Clinical Research

Clinical Research

  • Phase 1, 2, & 3 clinical trials of novel therapeutic agents
  • Interventions to improve adherence in CF
  • Assessments of Pain in CF
  • Optimizing CF Exacerbation Treatment
  • Observational Study of Non-tuberculous mycobacteria
  • Improving pre & post-transplant care for CF
  • Studies of outcomes and interventions for MRSA infection
  • Evaluating sex difference in exacerbation treatment and outcomes
  • Evaluation of a continuous sweat chloride monitor
  • Comparative effectiveness research of CF Guideline care

Patient Resources/Useful Links

Cystic Fibrosis Physicians

  • Michael Patrick Boyle, MD

    • Adjunct Professor of Medicine

    Expertise: Pulmonology

    Primary Location: Johns Hopkins Outpatient Center, Baltimore, MD

  • Rebecca Dezube, MD

    • Medical Director, Johns Hopkins Capacity Command Center, the Vice Chair for Clinical Operations (Johns Hopkins Hospital)
    • Assistant Professor of Medicine

    Expertise: Pulmonology

    Primary Location: Johns Hopkins Outpatient Center, Baltimore, MD

  • Noah Lechtzin, MD

    • Director, Adult Cystic Fibrosis Program
    • Associate Professor of Medicine

    Expertise: Pulmonology

    Primary Location: Johns Hopkins Outpatient Center, Baltimore, MD