Boss Lab
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Emily F. Boss, M.D., MPH, FACS
Emily F. Boss, M.D., MPH, FACS (nee Rudnick), is the lead PI for Project CONNECTS. She is the director of Pediatric Otolaryngology and a professor of Otolaryngology, Pediatrics, and Health Policy and Management at Johns Hopkins University School of Medicine and Bloomberg School of Public Health. She is passionate about organizational and interpersonal performance improvement in health-care delivery. Her widely recognized and federally funded research focuses on mitigating health disparities in pediatric surgical care through optimized patient-family-centered communication and decision-making. She was a national leader in the development and assessment of quality and performance measures in pediatric otolaryngology. She has an active clinical pediatric otolaryngology practice specializing in treatment of complex ear, nose, throat and neck disorders in children. A physician leader at Johns Hopkins, she is the medical director for Revenue Cycle Performance Improvement for Johns Hopkins Medicine and a physician adviser for Care Coordination/Clinical Resource Management at The Johns Hopkins Hospital.
Anne Links, MS, MHS
Anne Links, MS, MHS, is a research program manager with the Johns Hopkins School of Medicine, in the departments of Medicine, Otolaryngology and Pediatrics. Ms. Links has academic training in public health and psychology, with research interests including implicit bias, clinician/family communication, and shared decision-making. She has engaged in multiple projects evaluating clinician/patient/family communication and corresponding experiences with health care, including projects evaluating implicit bias, communication, and shared decision-making in pediatric elective surgical consultations. Ms. Links continues this research as the project manager for Project CONNECTS.
Angele Kelly, MSPH, B.S.
Angele Kelly, MSPH, B.S., is a research program coordinator for Project CONNECTS at Johns Hopkins clinics throughout Baltimore and a recent master's of science in public health recipient from Johns Hopkins Bloomberg School of Public Health. She aids in the recruitment and enrollment of patients, as well as data collection and analysis. Additionally, she coordinates study efforts between the parent site at Hopkins and the participating sites in Seattle and Dallas. Her research interests are centered around equitable health communication and access, health education and promotion, respectful communication between physicians and patients, health literacy, shared decision-making, and the impact human rights violations have on health.
Liliana Rodriguez, B.S.
Liliana Rodriguez, B.S., is a research program coordinator for Project CONNECTS and a recent graduate of Johns Hopkins University. She recruits and enrolls participants to the study at various Johns Hopkins clinics around Baltimore, as well as leads team meetings and assists with data analysis. She has always had an interest in pediatric and public health-centered research that focuses on improved treatment and health outcomes for children. She is incredibly grateful to be working with the Project CONNECTS team and excited to contribute to future research with the lab.
Michele Massa, B.S.
Michele Massa comes to the Project CONNECTS team as our RIAS coding expert. Her professional background is in theater, linguistics, education and health science. She studied at the Lee Strasberg Theatre Institute, Yale University, the New School University and Johns Hopkins School of Public Health. She began her work with Johns Hopkins University in 2007, and has RIAS-coded more than 5,000 medical encounters across more than 40 studies in various health contexts during her career.
Mary Catherine Beach, M.D., MPH
Mary Catherine Beach is a professor in the School of Medicine, with appointments in the Center for Health Equity and the Berman Institute of Bioethics at Johns Hopkins University. Dr. Beach’s research focuses on humanizing health care by promoting respect for patients, as well as improved patient-clinician communication. This communication scholarship spans a range of philosophies and methods, including conversational analysis, motivational interviewing, Roter Interaction Analysis System (RIAS), Verona Coding Definitions of Emotional Sequences (VR-CoDES), and shared decision-making. In addition, she has led several clinical trials demonstrating improvements in communication (clinician training) and attitudes toward patients with sickle cell disease (brief film intervention). Her research has been funded by the National Institutes of Health, the Agency for Healthcare Research and Quality, the Robert Wood Johnson Foundation, and the Greenwall Foundation.
Alya Ahmad, B.A.
Alya Ahmad, B.A., is a research assistant working with Dr. Mary Catherine Beach. She helps with patient recruitment and enrollment for Project CONNECTS across the Johns Hopkins sites.
Som Saha, M.D., MPH
Som Saha, M.D., MPH, received his medical degree and post-graduate training in internal medicine from the University of California, San Francisco. He completed postdoctoral training in the Robert Wood Johnson Clinical Scholars Program (RWJCSP) at the University of Washington, where he obtained a master’s degree in public health. Dr. Saha’s research focuses on the influence of race and ethnicity in the doctor-patient relationship, its relation to racial disparities in the quality of health care, and its implications for diversity in the health-care workforce. He has been recognized for his work with the Herbert W. Nickens Awards from the Society of General Internal Medicine (SGIM) and the Association of American Medical Colleges (AAMC), for commitment to diversity, equity, and justice in health care and medical education. He has served on the governing Council of SGIM, the National Advisory Committee for the RWJCSP and the advisory committee for the AAMC Holistic Review Project. He also served for 10 years as chair of the Oregon Health Services Commission and Health Evidence Review Commission, groups charged with prioritizing health services, developing evidence-based guidelines, and guiding coverage policy for Oregon’s public insurance programs. He currently serves on the editorial board for the journal Health Services Research. At Johns Hopkins, Dr. Saha serves as director of the TL1 Clinical Research Training Program within the Institute for Clinical and Translational Research, and co-directs the Epidemiology course for first-year medical students.
Daniela C. Rodríguez, DrPH, MPH
Daniela C. Rodríguez, DrPH, MPH, studies how politics, public health and evidence intersect in policies that impact vulnerable communities around the world. For Project CONNECTS, Dr. Rodríguez provides technical inputs around qualitative methods and engages with Latinx families through the project.
Chenery Lowe, ScM, CGC, Ph.D.
Chenery Lowe, ScM, CGC, Ph.D., is a genetic counselor, health-care communications researcher and current postdoctoral scholar at Stanford University. Her research interests include clinical communication, implicit bias, health literacy, shared decision-making and ethical dimensions of patient-provider relationships. Within Project CONNECTS, she is conducting an analysis of pediatric surgery consultations using methods that include the Roter Interaction Analysis System (RIAS) to better understand racial disparities in patient care and outcomes.
Grace Leu, M.D.
Grace Leu, M.D., is a resident in the Department of Otolaryngology–Head and Neck Surgery at Johns Hopkins and graduated from Tufts University School of Medicine. Prior to starting her residency, she spent a year doing research under the mentorship of Dr. Emily Boss, focused on patient- and family-centered communication between surgeons and parents of pediatric patients undergoing elective pediatric surgeries.
Ellie Thompson, M.D., Ph.D.
Ellie Thompson, M.D., Ph.D., is a resident in the Department of Otolaryngology enrolled in the research track. Prior to residency, she completed a Ph.D. in Communication Sciences and Disorders at Northwestern University, followed by a medical degree at Emory University. As part of the Project CONNECTS team, she is broadening her skills in qualitative research through projects focusing on optimizing communication to improve health outcomes.
Ashwin Reddy, M.D. student, B.S.
Ashwin Reddy, B.S., is a fourth-year medical student at Johns Hopkins School of Medicine and is an aspiring otolaryngologist–head and neck surgeon. He is a strong proponent of health equity, both domestically and globally. Ashwin has led health equity workshops for Fortune 50 companies and was recently awarded a Fulbright-Fogarty fellowship to study the hearing health of marginalized brick kiln workers in Nepal. Within Project CONNECTS, Ashwin is currently researching how child weight status influences surgeon-parent communication in consultations for pediatric tonsillectomy.
Ron Mitchell, M.D.
Ron Mitchell, M.D., is a professor of Otolaryngology and Pediatrics and chief of Pediatric Otolaryngology, UT Southwestern Medical Center, Children's Medical Center Dallas. He was the chair of the update to the guideline “Tonsillectomy in Children,” published by the American Academy of Otolaryngology, Head and Neck Surgery in 2019. He has been involved in research into the clinical aspects of obstructive sleep apnea (OSA) in children for the last 20 years and was a site PI for the Childhood Adenotonsillectomy Study (CHAT) study and the Pediatric Adenotonsillectomy Study for Snoring (PATS) and has more than 180 peer-reviewed publications (as well as books, book chapters, editorials and reviews) on OSA. He is the site PI for Project CONNECTS and clinically directs the otolaryngology and sleep medicine divisions at UT Southwestern/Dallas Children’s Medical Center. He is also a past president for the American Society of Pediatric Otolaryngology (ASPO).
Francesca Chambers
Francesca Chambers is a clinical research coordinator for UTSW's otolaryngology pediatric department. She has been in research for more than 10 years.
Claudia (Erica) Rivera, CMA
Claudia (Erica) Rivera, CMA, works as a research coordinator for UTSW. She has been in research for a little more than five years. Erica is so thankful for the opportunity to be a part of the future and to make life easier for children. She loves to make great friendships with the lives touched through research every day.
Sanjay R. Parikh, M.D., FACS
Sanjay R. Parikh, M.D., FACS, is a pediatric otolaryngologist and the site primary investigator for Project CONNECTS at Seattle Children’s Hospital. Dr. Parikh is a professor at the University of Washington and associate surgeon-in-chief at Seattle Children’s Hospital, where he has a focus on advancing complex airway surgery in children.
Alyssa Taira, B.S.
Alyssa Taira, B.S., is a clinical research coordinator at Seattle Children’s Hospital. She works on recruiting and enrolling families to the Project CONNECTS study at the Seattle Children’s Hospital site.
Eunkyoung (Hannah) Hong, Ph.D.
Eunkyoung (Hannah) Hong, Ph.D., is a clinical research coordinator on Project CONNECTS, responsible for organizing and overseeing the research efforts. She is genuinely passionate about improving health-care outcomes.
Beatriz Cruz
Beatriz Cruz works as a program coordinator for Seattle Children's Hospital. She is able to use her bilingual skills to contribute to the Project CONNECTS grant. She is grateful for the opportunity to be able to raise the voices of black, indigenous and other people of color (BIPOC) community within this team and through Project CONNECTS.
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- i. Claus LE, Amos JM, Links AR, Beach MC, Boss EF. Surgeon Information-Sharing, Parent Verbal Engagement, and Parent Knowledge of Pediatric Adenotonsillectomy. Otolaryngol Head Neck Surg. 2024 Feb;170(2):552-559. doi: 10.1002/ohn.549. Epub 2023 Oct 9. PMID: 37811575; PMCID: PMC11066756.
- ii. Links AR, Cooper J, Lind M, Chavez LJ, Boss EF. Tonsillectomy Utilization: Persisting Associations with Ethnicity and Race, Public Insurance, and Rurality Across Studies. Acad Pediatr. 2024 Jul 8:S1876-2859(24)00241-9. doi: 10.1016/j.acap.2024.06.020. Epub ahead of print. PMID: 38986930.
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- i. Ikeda AK, McShay C, Marsh R, Saini S, Sardesai M, Boss EF, Weaver EM. Barriers and communication behaviors impacting referral to sleep surgery: qualitative patient perspectives. J Clin Sleep Med. 2023 Jan 1;19(1):111-117. doi: 10.5664/jcsm.10260. PMID: 36591793; PMCID: PMC9806776.
- ii. Ikeda AK, McShay C, Marsh R, Saini S, Sardesai MG, Weaver EM, Boss EF. Patient Factors and Preferences in Choosing Sleep Surgery for Obstructive Sleep Apnea: A Qualitative Study. Otolaryngol Head Neck Surg. 2023 Mar;168(3):514-520. doi: 10.1177/01945998221105404. Epub 2023 Jan 19. PMID: 35671145.
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- i. Leu GR, Links AR, Park J, Beach MC, Boss EF. Parental Expression of Emotions and Surgeon Responses During Consultations for Obstructive Sleep-Disordered Breathing in Children. JAMA Otolaryngol Head Neck Surg. 2022 Feb 1;148(2):145-154. doi: 10.1001/jamaoto.2021.3530. PMID: 34882170; PMCID: PMC8662534.
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- i. Claus LE, Links AR, Amos J, DiCarlo H, Jelin E, Koka R, Beach MC, Boss EF. Parent Experience of Communication about Children's Surgery: A Qualitative Analysis. Pediatr Qual Saf. 2021 May 19;6(3):e403. doi: 10.1097/pq9.0000000000000403. PMID: 34046536; PMCID: PMC8143772.
- ii. Cooper JN, Koppera S, Boss EF, Lind MN. Differences in Tonsillectomy Utilization by Race/Ethnicity, Type of Health Insurance, and Rurality. Acad Pediatr. 2021 Aug;21(6):1031-1036. doi: 10.1016/j.acap.2020.11.007. Epub 2020 Nov 15. PMID: 33207221.
- iii. Links AR, Callon W, Wasserman C, Beach MC, Ryan MA, Leu GR, Tunkel D, Boss EF. Treatment recommendations to parents during pediatric tonsillectomy consultations: A mixed methods analysis of surgeon language. Patient Educ Couns. 2021 Jun;104(6):1371-1379. doi: 10.1016/j.pec.2020.11.015. Epub 2020 Nov 13. PMID: 33342578.
- iv. Leu GR, Links AR, Ryan MA, Walsh JM, Tunkel DE, Beach MC, Boss EF. Assessment of Parental Choice Predisposition for Tonsillectomy in Children. JAMA Otolaryngol Head Neck Surg. 2021 Mar 1;147(3):263-270. doi: 10.1001/jamaoto.2020.5031. PMID: 33377933; PMCID: PMC7774054.
- v. Leu GR, Links AR, Tunkel DE, Walsh JM, Ryan MA, DiCarlo H, Jelin EB, Beach MC, Boss EF. Understanding Bias in Surgery: Perceived Cultural Similarity Between Surgeons and Patient Families. Otolaryngol Head Neck Surg. 2021 Aug;165(2):282-289. doi: 10.1177/0194599820982639. Epub 2021 Jan 12. PMID: 33430701.
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- i. Kannan S, Seo J, Riggs KR, Geller G, Boss EF, Berger ZD. Surgeons' Views on Shared Decision-Making. J Patient Cent Res Rev. 2020 Jan 27;7(1):8-18. PMID: 32002443; PMCID: PMC6988707.
- ii. Links AR, Callon W, Wasserman C, Walsh J, Tunkel DE, Beach MC, Boss EF. Parental role in decision-making for pediatric surgery: Perceptions of involvement in consultations for tonsillectomy. Patient Educ Couns. 2020 May;103(5):944-951. doi: 10.1016/j.pec.2019.12.012. Epub 2019 Dec 16. PMID: 31866196.
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- i. Beach MC, Callon W, Boss E. Patient-centered decision-making. Patient Educ Couns. 2019 Jan;102(1):1-2. doi: 10.1016/j.pec.2018.11.005. PMID: 30527093.
- ii. Ryan MA, Boss EF. Patient Engagement in Otolaryngology. Otolaryngol Clin North Am. 2019 Feb;52(1):23-33. doi: 10.1016/j.otc.2018.08.003. PMID: 30390737.
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- i. Boss EF, Links AR, Saxton R, Cheng TL, Beach MC. Physician Perspectives on Decision Making for Treatment of Pediatric Sleep-Disordered Breathing. Clin Pediatr (Phila). 2017 Oct;56(11):993-1000. doi: 10.1177/0009922817702939. Epub 2017 Apr 21. PMID: 28429620; PMCID: PMC6460467.
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- i. Boss EF, Links AR, Saxton R, Cheng TL, Beach MC. Parent Experience of Care and Decision Making for Children Who Snore. JAMA Otolaryngol Head Neck Surg. 2017 Mar 1;143(3):218-225. doi: 10.1001/jamaoto.2016.2400. PMID: 27560831; PMCID: PMC5798224.