The Johns Hopkins Encephalitis Center provides expert clinical care for patients with autoimmune and infectious encephalitis. Our team of specialists in neurologic inflammation, infectious disease and critical care treats patients and conducts research to improve diagnosis and treatment of this disabling condition. Our vision is that prompt identification of encephalitis combined with advanced diagnostic and therapeutic techniques will improve quality of life for patients with encephalitis.
Patient Experience
"If I had just two words to describe the medical staff at Johns Hopkins, they would be “teamwork” and “love.” My battle with anti-NMDA receptor encephalitis was not an easy one. It made it difficult to advocate for myself as a patient. The team at Johns Hopkins helped address the complexities of my illness and sent me on my way to recovery. I must thank Dr. Probasco and Dr. Peters, nurses Hope, Clement, Stephanie, Beth, Sophie, Dorian and Mary, all of the social workers and CNAs, the kitchen staff, sitters, residents and all others who played a role, no matter how minor, in my healing process. There are simply too many to name! I'm thankful that the medical team listened to my family’s concerns and the input of my father, who was my mouthpiece and biggest advocate. It is truly comforting to know that so many people came together to make sure I regain my health. At the end of the day, I thank God; the prayers of family, friends and church family; and the dedicated work of Johns Hopkins in helping me get to where I am."
- Encephalitis Center Patient
Encephalitis Support Groups and Resources
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The Department of Medical/Surgical Social Work provides quality support services to patients and families through expert assessment and counseling.
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The Department of Spiritual Care and Chaplaincy is available seven days a week, 24 hours a day. Any patient, family member or visitor may request to speak with a chaplain, and any staff member can make a referral to the pastoral care team.
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The organization’s stated aim is to improve the quality of life of all people affected directly and indirectly by encephalitis.
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The alliance strives to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research and clinical care.
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This organization seeks to improve the quality of life for those impacted by encephalitis thought research, awareness and advocacy.
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This nonprofit organization formed in 2012 to collect, archive, and share information about Hashimoto’s encephalitis/encephalopathy.
Learn more about The Hashimoto’s Encephalopathy SREAT Alliance.
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This nonprofit foundation promotes awareness, provides support and raises funds for research committed to understanding and ending encephalitis and related diseases.
Learn more about The Anti-NMDA Receptor Encephalitis Foundation, Inc. - Canada.
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This is a family/patient-centered organization that assists members from getting a diagnosis to recovery and the many challenges experienced throughout that journey.
Learn more about the International Autoimmune Encephalitis Society.
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