Patient Resources
Helpful Links
Long Covid Physio - A peer support, education and advocacy, patient-led association of Physiotherapists (Physical Therapists) living with Long COVID.
Awareness for POTSies - A non-profit organization providing support to the POTS and chronic illness community.
The Dysautonomia Project - A non-profit collaborative effort to provide dysautonomia education to patients, healthcare providers, and communities.
Solve ME/CFS - A non-profit organization serving as a catalyst for research into myalgic encephalomyelitis/chronic fatigue syndrome, Long Covid and other post-infection diseases.
Dysautonomia International - A non-profit that seeks to improve the lives of those with autonomic nervous system disorders through research, education and public awareness.
Long Covid Alliance - A network of patient-advocates, scientists, disease experts, and drug developers using knowledge and resources to educate policy makers and accelerate research.
The American ME and CFS Society - Serving patients and caregivers living with myalgic encephalomyelitis/chronic fatigue syndrome through support, advocacy, and education.
The Ehlers-Danlos Society - A global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes and hypermobility spectrum disorders.
EDS Awareness - Helping people with Ehlers-Danlos find or organize support groups in their local communities.
Helpful Documents
Activity Diary Sheet — Use our easy-to-use activity diary to track your Chronic Fatigue symptoms.
Compression Garments — Learn how compression garments can help you manage your CFS symptoms.
Cooling Garments — Find out how you can benefit from using cooling garments to help control your symptoms.
Corn-free Diet — Learn how to begin a corn-free diet.
Dairy-free Diet — Find out how to start a dairy-free diet.
Egg-free Diet — Begin an egg-free diet using this resource.
Fatigue and Energy Conservation — Learn how to conserve energy with this resource.
Gluten-free Diet — Begin a gluten-free diet using this resource.
Low Histamine Diet — Find out how to start a low histamine diet.
Post Exertional Malaise — Learn about post exertional malaise and how to manage it.
Soy-free Diet — Use this resource to help you begin a soy-free diet.
Loss of Smell — Learn about a loss of smell, the symptoms and how to treat it.